Stem cell transplant: just the basics

A friend who has a friend facing a stem cell transplant thought, with good reason, that I could pass on some useful information.

Some people just don’t get it

A friend made a comment that shows some people have no idea. No idea what, you might wonder. No idea what blood cancer patients go through during and after stem cell transplant.

Virtual theater keeps people engaged

Many are staying connected to live productions during the pandemic

High school tradition with friends

We didn’t plan for the bench photo to symbolize long-term friendship when seven of us high school seniors sat on a bench in Stuyvesant Square Park in New York City, down the street from our school, and asked my then-boyfriend to take a photo of us on a breezy spring day before graduation.

Cancer and COVID

While individuals are at greater risk, treatment and screening must continue

Airport therapy dogs comfort anxious travelers

Afraid to fly? These dogs can help. Therapy dogs are making people smile.

Proprietary blends: supplements with hidden risks

Supplements that have a mixture of ingredients are called proprietary blends — which are not required to list all the ingredients or the amounts of what vitamins and supplements are in the mixture. Moriarty won’t buy proprietary blends.

Putting treatments into motion

Parkinson’s disease — a progressive movement disorder — has no cure, but better treatments are giving more hope

Bridging linguistic and cultural divides

Holyoke Community College Career Focus
Fall, 2013

 


When ESL professor Rubaba Matin was asked to choose a book for HCC’s READ program, she picked Jhumpa Lahiri’s “The Namesake,” a story of an Indian family’s search for the American dream.

“It is a poignant story of immigrant experiences: cultural clashes, difficulties of integration and the pangs of intergenerational conflicts,” reads the explanation she wrote for a poster in the library. “The Namesake is the story of my ESL students from different countries, and it is my story too,” she wrote.

Matin, a native of the former East Pakistan, now Bangladesh, uses her own experience to help students cross linguistic and cultural divides.

“What I went through in the beginning is what my students go through,” she said during an interview in her cozy office in the Fine and Performance Arts building. [Read more…]

All in a day’s work

Dana-Farber Cancer Institute Paths of Progress
Spring/Summer 2011
 
        

        
Katie Munroe, BSN, RN, is marking her 10th year as an infusion nurse in Dana-Farber’s Jimmy Fund Clinic, which cares for children with cancer and related diseases in conjunction with inpatient care at partnering Boston Children’s Hospital next door. During an average day, Munroe provides her patients with chemotherapy infusions, antibiotics, transfusions, and IV hydration, along with advice, information, and comfort. For her, nursing means more than clinical care. It’s everything from helping a frazzled mother of a young patient arrange day care for her other children to adjusting a teenager’s V-neck prom dress to disguise her Port-A-Cath, a device that channels intravenous medication into the body.
 
“I try to be understanding, because I know how I would want to be treated if I were in a patient’s situation,” says Munroe, who has three young children with her husband, Jim, a construction worker.
 
We recently followed Munroe through a typical day.
 
After entering the lobby of the Dana building and heading up to the Jimmy Fund Clinic, Munroe takes a look at her day’s caseload.
 
7:55 a.m. – Munroe arrives at work. Before driving in from her suburban home, she has prepared lunches and backpacks for her kids and gotten them started on their day. A slender 36-year-old with stylishly short black hair, large almond-shaped blue eyes, and an easy smile, she now greets co-workers and puts her coffee, yogurt, and granola down on the L-shaped desk she shares with three other nurses. She works until 4 p.m. on Tuesdays and 6 p.m. on Wednesdays and Fridays, and usually cares for about five patients each day.
 
“I have to organize and prioritize,” Munroe says.
 
8 a.m. – On this Tuesday, patients checking in include seven-year-old Nicholas Barbaro, who travels with his parents from New Hampshire to be treated for neuroblastoma (a cancer that arises in the abdomen). Later, Munroe will give him IV hydration to protect his kidneys and bladder from damage by the chemotherapy he is scheduled to receive that afternoon.
 
8:30 a.m. – Charge nurse Krista Cardini, BSN, RN, passes around a list of children being treated that day. Munroe reviews her patient assignments, which may increase as the day goes on. She starts by checking chemotherapy orders on a computer screen, matching doses with patients’ height and weight. When the medicine arrives from the pharmacy, Munroe examines the labels for accuracy, while another nurse stands beside her and matches them with the orders on the computer.
 
9 a.m. – One of Munroe’s older patients, 16-year-old Jonathan Travelyn, gives her a good-bye card that includes a gift certificate for coffee. This is Jonathan’s last day in the clinic; he has completed 11 rounds of once-a-week chemotherapy to treat Hodgkin’s lymphoma.
 

“They’re always smiling and asking if anything’s new,” Jonathan says of Munroe and Robin Griffey, BSN, RN, who care for him together.

Munroe says cancer treatment can be easier for children diagnosed as babies or toddlers; they spend so much time in the clinic or hospital that it becomes their routine.

“It is the older, school-age children and teenagers who have a more difficult time accepting what this means to them,” Munroe explains. She adjusts as necessary, approaching them in a developmentally appropriate way, speaking honestly, and giving choices when possible.

Humor can help. While waiting for Jonathan’s chemo to come from the pharmacy, Munroe prepares a tray containing medication to control nausea.

“I usually hold it up and say, ‘hors d’oeuvres,'” she says, hoisting the tray on her shoulder. Adds Griffey, “We make a little comedy team; we keep him laughing.”

Munroe goes back and forth between Travelyn and Cody Buzzell, a nine-year-old with a brain tumor. Cody, who lives in Maine, needs an oral dose of chemotherapy and a quick “push” of chemo through his Port-ACath. Because he can’t take pills, he will get the oral dose, in liquid form, from a syringe.

10 a.m. – Five-year-old Nathaniel Flanagan of North Kingston, R.I., is not on Munroe’s list today, but she is so happy when she hears that doctors have successfully implanted his new Port-A-Cath that she looks for him in the waiting room.

Nathaniel, who has a blood disorder called severe combined immunodeficiency, receives many medications for the side effects of a recent stem cell transplant. Munroe was often the nurse who inserted a new IV when he came in, but now medication can go directly into his port.

“No more poke, poke, poke,” Munroe says, gently lifting Nathaniel’s arm. “What do you think of your new tubie?”

“Good,” he answers, raising his yellow “Repair Crew” T-shirt to show her before turning back to his video truck game.

Back in the area where patients receive treatment in chairs or beds, Munroe can hear cries of “Owie, owie” coming from one end of the corridor, and a young person’s peals of laughter erupting from the other end.

Munroe frequently returns to her desk each shift to check her computer for patient updates and coordinate assignments with other nurses and doctors.

“We definitely work as a team,” she says. “We sit so close that we know each other well.”

Caring for an average of five patients a day, Munroe needs to organize and prioritize throughout her shift.
The group includes pediatric oncologist Laura McCullough, MD, who acknowledges that childhood cancer is every parent’s worst nightmare – and adds that it’s difficult for caregivers, too.

“It’s hard to watch kids suffer,” she says. “Sometimes they lose their battle. But you have to be the eternal optimist, and most of our kids do great.”

Munroe says that no matter what the outcome is, “I like to think that somehow I made this situation better.”

11 a.m. to 1 p.m. – While Jonathan’s infusion is finishing, Munroe and other nurses gather around and sing “Happy Last Day of Chemo to You.”

The teen has traveled here from Rhode Island with his mother, Maria, and his father, Raymond, both of whom praise Munroe’s care.

“Katie tells us about her kids, and she knows about us and our family,” Maria Travelyn says. Adds her husband, “You start talking about other things, and you get your mind off of the cancer.”

Cody Buzzell’s father, meanwhile, has helped his son onto an exam table. Munroe admires the nine-year-old’s stuffed penguin and black “Return of the Jedi” T-shirt and then asks if he wants his medicine in one or two mouthfuls.

“I think you should do it all at once,” he says.

“I like your spirit,” Munroe replies with a smile.

Cody makes a face while swallowing, but his father quickly gives him a sip of apple juice. The infusion follows without a problem.

1 to 2 p.m. – Munroe checks the computer for patient status updates and does paperwork, followed by a quick lunch in the break room with other nurses and staffers.

2 p.m. – Nicholas Barbaro lies in bed receiving IV hydration. He is waiting for a room to open at Boston Children’s Hospital, where he is scheduled for three days of inpatient chemo. Munroe monitors him and reassures his parents that a room will open soon. The seven-year-old complains only once.

Munroe and her colleagues know just how to make their patients laugh, whether they are age 6 or 16.
“Move, move, move,” he says to his father, Tony, who is blocking his son’s view of cartoons on TV. Munroe laughs.

“It’s one of the reasons I love pediatrics,” Munroe says on the way back to her desk. “Children bounce back and they’re resilient.”

3 p.m. – Nicholas’ inpatient room is now ready. Munroe wishes the parents well.

3 to 4 p.m. – She finishes up her shift with paperwork.

4:30 to 5: 30 p.m. – Munroe drives home.

“I have one of those jobs that you can’t just leave behind,” she says. “My commute allows me time to think about my patients and how I helped them, or maybe what I could have done better or differently.”

Her husband relieves the babysitter around 4:15 p.m.; he feeds the kids early on her long days, but on the others she makes something for them all to eat. Sometimes after work, she goes to the gym or runs with two other clinic nurses.

7:30 p.m. – She tucks the kids in. “I give each one an extra tight hug, well aware of how incredibly lucky I am.”